Collective wisdomto stop boredom for 60+ with Guillain–Barre syndrome

Hi there. Yes, gbs is really horrid. It struck me in 2009 (I had some vaccinations ready to travel to Syria!) I'd never heard of it before and it was truly scary to go from a healthy confident independent person to completey dependent. My family were greatly helped by volunteers from www,gbs.org.uk, if you're in the UK do contact them for help and advice.
I was not bored to start with, I think my system shut down, and anyway hospital routines can be a distraction. But I was very very frightened and angry about what had happened and what was to come. Supportive family and friends who visited for a short time, bringing news were welcopme, but sopmetimes I didn't give a d*** about anything beyond my own broken body. I was more bored when recovery began - then all my limited energy went on basic stuff like sitting up and combing my hair, didn't leave much for nicer things! Good radio was a great help - preset some channels, for speech, classical, drama, pop etc. And avoid fiddly buttons. Four years on I'm getting on ok, haven't got my balance or body position sense back, still no feeling in legs, tingling and shocks in feet makes walking hard. But so glad to be alive! There's a good support group on facebook. And you might want to read no laughing matter by joseph heller. Probably a bit early yet for your cousin. Do let me know if you want more info. Best. Els

Lots of ooks on tape, from the library.